罹患癌症少年生活經驗之探討

CMUR > College of Health Care > School and Institute of Nursing > Theses & dissertations > Item 310903500/32545

Please use this identifier to cite or link to this item: http://ir.cmu.edu.tw/ir/handle/310903500/32545

Title:	罹患癌症少年生活經驗之探討 The lived experiences of young youths with cancer.
Authors:	張雲英;Yung -Ying Chang
Contributors:	健康照護學院護理學系碩士班
Keywords:	生活經驗;癌症;少年;life experience;young youths;teenagers and young adults;cancer
Date:	2010
Issue Date:	2010-09-29 12:11:22 (UTC+8)
Abstract:	本研究旨在探討罹患癌症少年的生活經驗。研究設計採取胡塞爾的現象學研究法，於台灣中部某醫學中心小兒科病房立意取樣，收案條件包括年齡層介於十一至十八歲、病理報告確立為癌症、能夠說出自身疾病診斷、可以用國台語溝通、經家長(監護人)同意、且願意參與試驗，但排除具有認知障礙者。以一對一非結構式訪談的方式收集資料，訪談資料採用Colaizzi’s (1976)分析法。資料收集至飽和狀態共會談16位少年。研究結果共有四個主題及十七個次主題，分別為無伴奏樂章 (延宕的學校課業、受限的娛樂活動、疏離的同儕互動、單調的居家生活)；苦難迴旋曲 (症狀的困擾、治療的苦楚、復發的折磨、就醫的束縛、食療的負擔)；心弦五重奏 (懼怕、擔憂、難過、生氣、孤單)；向陽詠嘆調 (緊密的家庭關係、樂觀的正向思維、健康的生活習慣)。由此研究結果明顯可見，少年罹癌後面臨許多痛苦和壓力，因此，建議醫療人員透過對他們生活經驗的瞭解，提供身心靈整體性照護措施，提高罹病後的生活品質。研究結果亦建議教育當局，規劃符合罹癌少年需求的教育方案，如網路遠距教學等。再者，亦建議護理人員走入校園，提供罹癌少年就讀班級師生適當的衛生教育，讓他們瞭解何謂兒童癌症及如何與罹癌少年相處。 This study explores the life experiences of young youths with cancer in Taiwan and is designed by using Edmund Husserl’s Phenomenology method. Purposive sampling and case selection require participants to be between ages of eleven to eighteen whose cancer is pathologically confirmed, to be self-identified as cancer patients and to be able to communicate in Taiwanese or Chinese. They must acquire their parents or guardians’ consent before participation. Data of each one-on-one interview are analysed by Colaizzi's seven stages method (1976) where sixteen cases studied are divided into four main themes and seventeen sub-themes. First main theme is unconnected solo with subthemes of delayed education, limited activities, absence of peer relationships, and dull life. Second one is suffering rondo and it includes sufferings from symptoms, sufferings from therapies, torment from cancer recurrence, the feeling of being trapped in hospital, and the burden of food therapy. Next theme is string quintet of heart, which includes fear, worry, sadness, anger, and loneliness. Finally we have sunward aria that includes strong family relationships, optimistic thinking and healthy lifestyles. These young youths with cancer are under enormous suffering and stress and in order to improve their quality of life, health care providers should develop not only physical care but also emotional care by understanding their life experiences. This study also suggests that educational institution should establish certain learning system suitable for young patients such as distance learning. It’s also beneficial that nurses conduct health education classes directly in their schools so these young patients' classmates can become more aware and sympathetic of their illness.
Appears in Collections:	[School and Institute of Nursing] Theses & dissertations

Files in This Item:

File	Description	Size	Format
cmu-99-9477013-1.pdf		1547Kb	Adobe PDF	1222	View/Open
index.html		0Kb	HTML	298	View/Open

Loading...